Admiral
Well-Known Member
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- 914
13 year old PFS sufferer.
I spare you the entire story. Have tried lots of hormonal protocals. Trying a different route now.
Brief history of things I tried these past two years:
2016/2017:
NTD and DHEA
This crashed me. The first real crash I experienced in these 13 years. Things have gradually gotten worse, but this ramped things up a lot.
My doctor and I (and solvepfs.com) thought it might be because of weak adrenals. Took a saliva test, and cortisol was indeed low, but I reckon it was because I crashed from NTD in the first place. I figured I always had high cortisol symptoms. NTD also messed up my sleep, which was always quite decent. Sleep has been fragile ever since, mostly suffering from early morning insomnia or wake up frequently in the middle of the night. Added hydrocortisone to the NTD. Did nothing. Went as high as 30mg a day for about a month or two. Didn't feel much. Digestion was perfect, and sleep actually was decent again. Actually had some energy and some relieve in symptoms, but they didn't stick.
Also got vitiligo spots that made me freak out. So I quit. Since then every little bruise, wound or cut heals slowly, with no new pigmentation. Meaning that every cut or wound results in white tissue and doesn't tan.
Didn't do anything from september 2017 til january 2018. My body got back to baseline a bit, but still very sluggish.
From januari till march I tried (and still do) the electrolyte protocol (potassium, magnesium, sodium, EAA, HCL, malic/fulvic acid, spinache (200grams each day), meats, protein, rice, no sugar), with some added suggestions from therapists later on, which I know now might not have been smart choices. This protocol made me feel meh. Lots of detox symtoms
After two months on the electrolyte protocol, I've added Boron, Molybdeen, Silicium (2x). The former two were low on my hairtest. Therapists mentioned that they needed to be upped before the rest can be worked on. I happily went along, as it made sense and they are the best help I can get over here. That means, that for the past 10 days I've taken:
- Boron, Molybdeen, Silicium (2x)
- Potassium (~400mg - 3x)
- Betaine HCL (2 pills - 3x)
- Bio-zyme (1/2 pills - 3x)
- EAA (1/2 pills - 3x)
- Malic acid (2gr)
- Fulvic acid (25ml - 2x)
- MSM
- Vitamine C, E
- Vitamine B2, B3, B6
- Probiotica L-Reuteri
This gave me symptoms of copper elimination (insomnia, depression, bloated belly, skin rash, tinnitus, candida flare up, etc.), which I still suffer from. I also get a nice new wrinkle every time I look in the mirror. My therapist mentioned I should take copper as it was low om my hairtest. Said I should always take it with a bit of zinc. Took that this past monday and I got even worse. Even paid a visit to the emergency room due to weird ass heart palpitations. They made me sleep with this heart cabinet/monitor thing because they couldn't find anything weird. Paid a visit there three years ago as well, when I was on T-suppletion. Same feeling. Turned out that testosteron, either herbs or synthetic gives me sleep apnea.
Possible additions to try (therapist/hair test)
- Fosfor
- Selenium
- Mangaan
Latest blood test:
Testosteron 7.9 (9-35 - Hoovers between 8 and 12 a lot, usually)
Cortisol 0.15 (14-42 - Is lower since I had that HC/Thyroid try-out)
Progesterone 0.5 (0.2-0.5 - What gives? This varies a lot. Used to be in the middle or low).
Estrogen 0.2 (0.3-0.16 - always low)
Ceruloplasmine 0.24 (0.2-0.6)
Insuline 6 ( ... - 39)
C-peptide 0.4 (0.3-2.35)
Iron 22 (14-28)
Complement component C4 0.21 (0.1-0.4)
Iron binding capacity latent 24 (24-54)
Iron panel total 46 (45-81)
Ferritine 134 (30-400)
Transferrine 2.14 (1.8-3.6)
Folium acid 34.1 (8.8 - ... )
Latest urine test:
Methylhistamine 91 ( ... - 150)
Methylimidazole ecotic acid 0.9 (0.9-1.9)
Any advice is always welcome..
I spare you the entire story. Have tried lots of hormonal protocals. Trying a different route now.
Brief history of things I tried these past two years:
2016/2017:
NTD and DHEA
This crashed me. The first real crash I experienced in these 13 years. Things have gradually gotten worse, but this ramped things up a lot.
My doctor and I (and solvepfs.com) thought it might be because of weak adrenals. Took a saliva test, and cortisol was indeed low, but I reckon it was because I crashed from NTD in the first place. I figured I always had high cortisol symptoms. NTD also messed up my sleep, which was always quite decent. Sleep has been fragile ever since, mostly suffering from early morning insomnia or wake up frequently in the middle of the night. Added hydrocortisone to the NTD. Did nothing. Went as high as 30mg a day for about a month or two. Didn't feel much. Digestion was perfect, and sleep actually was decent again. Actually had some energy and some relieve in symptoms, but they didn't stick.
Also got vitiligo spots that made me freak out. So I quit. Since then every little bruise, wound or cut heals slowly, with no new pigmentation. Meaning that every cut or wound results in white tissue and doesn't tan.
Didn't do anything from september 2017 til january 2018. My body got back to baseline a bit, but still very sluggish.
From januari till march I tried (and still do) the electrolyte protocol (potassium, magnesium, sodium, EAA, HCL, malic/fulvic acid, spinache (200grams each day), meats, protein, rice, no sugar), with some added suggestions from therapists later on, which I know now might not have been smart choices. This protocol made me feel meh. Lots of detox symtoms
After two months on the electrolyte protocol, I've added Boron, Molybdeen, Silicium (2x). The former two were low on my hairtest. Therapists mentioned that they needed to be upped before the rest can be worked on. I happily went along, as it made sense and they are the best help I can get over here. That means, that for the past 10 days I've taken:
- Boron, Molybdeen, Silicium (2x)
- Potassium (~400mg - 3x)
- Betaine HCL (2 pills - 3x)
- Bio-zyme (1/2 pills - 3x)
- EAA (1/2 pills - 3x)
- Malic acid (2gr)
- Fulvic acid (25ml - 2x)
- MSM
- Vitamine C, E
- Vitamine B2, B3, B6
- Probiotica L-Reuteri
This gave me symptoms of copper elimination (insomnia, depression, bloated belly, skin rash, tinnitus, candida flare up, etc.), which I still suffer from. I also get a nice new wrinkle every time I look in the mirror. My therapist mentioned I should take copper as it was low om my hairtest. Said I should always take it with a bit of zinc. Took that this past monday and I got even worse. Even paid a visit to the emergency room due to weird ass heart palpitations. They made me sleep with this heart cabinet/monitor thing because they couldn't find anything weird. Paid a visit there three years ago as well, when I was on T-suppletion. Same feeling. Turned out that testosteron, either herbs or synthetic gives me sleep apnea.
Possible additions to try (therapist/hair test)
- Fosfor
- Selenium
- Mangaan
Latest blood test:
Testosteron 7.9 (9-35 - Hoovers between 8 and 12 a lot, usually)
Cortisol 0.15 (14-42 - Is lower since I had that HC/Thyroid try-out)
Progesterone 0.5 (0.2-0.5 - What gives? This varies a lot. Used to be in the middle or low).
Estrogen 0.2 (0.3-0.16 - always low)
Ceruloplasmine 0.24 (0.2-0.6)
Insuline 6 ( ... - 39)
C-peptide 0.4 (0.3-2.35)
Iron 22 (14-28)
Complement component C4 0.21 (0.1-0.4)
Iron binding capacity latent 24 (24-54)
Iron panel total 46 (45-81)
Ferritine 134 (30-400)
Transferrine 2.14 (1.8-3.6)
Folium acid 34.1 (8.8 - ... )
Latest urine test:
Methylhistamine 91 ( ... - 150)
Methylimidazole ecotic acid 0.9 (0.9-1.9)
Any advice is always welcome..
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