I’m a 21 y/o PSSD-er. So much sympathy for this thread. ****… This is hard stuff, guys. I feel for all of you.
Recently I went to Dr. Goldstein in San Diego and learned that I too have penile scarring/fibrosis. It was a surreal find for me, and a mix of happy and sad. Happy because my struggles were justified, but sad because there isn’t a ton of medical knowledge on how this happened, or how to reverse it. I’ve bounced around with the 5-HT hypothesis for years (3.5 years of PSSD for me), and this changed some things. I know now that there is a physical aspect to my ED as well.
Dr. Goldstein put me on 5mg of Cialis daily, which is why I’d like to ask
@joekool why you think that this dose might be too much / cause damage? My hope is that it will increase the blood flow that you all have talked about above. Joe, your post resonated with me a lot.
“I had cold & hard flaccid, an hourglass shape to my flaccid & shortened. When getting an erection, that hourglass was there briefly but went away with full erection. Everything felt like it was 'retracted’”
I also have a sort of performance anxiety that has come from PSSD. Never had it before, but Cortisol / Adrenaline kicks in sometimes before sex, and that’s just lights out (which makes total sense biologically). I don’t know if this is a chemical problem or what. My heart will go into hyperdrive, and I don’t remember that before PSSD. It just pounds and pounds when I’m anxious now. This compounds the physical problem of PSSD, and **** does it kill the mood. I’ve heard that DHT can help with mood and confidence, and that might be another reason that I want to try it eventually.
I NEED to fast. I know this, it’s just hard to find a time. But, that’s a bad excuse and I know it. I am a student and work at a hospital a lot, so there really isn’t a time where I can afford to worry about feeling lightheaded or too sick from not eating for a week. My hormones LOOK normal, but I know they’re not.
As for the nerve (and jeez you’re posting everything that I’ve been thinking recently so this makes me so so happy) - I have seen damage from DHT lack and blood flow lack. People with a problem in that nerve have many similar problems as us. Another thing I want to emphasize is the pelvic floor. Pelvic floor tension is 100% a problem of mine. Dr. Goldstein told me that too. You gotta learn to relax the floor. There are people with many of our same problems just from having a tense floor. It cuts off blood. That will tank confidence. That will compound the problem. Soon, you loose blood flow, which can cause the fibrosis we see, and it’s a vicious cycle. I urge everyone here to work on the pelvic floor muscles.
I started working on the pelvic floor last weekend. Then I started 5mg daily Cialis monday. Monday night I had the best erection in months, and tuesday I had a killer day. Parts of my **** were throbbing with life and everything felt so much like pre-PSSD. Yesterday morning / afternoon was maybe my best day since PSSD. I was horny with boners that came faster, were harder, and stayed longer. I seriously thought that I was on the verge of putting PSSD behind me for good. I went to see my gf last night and everything fell apart. At first I wanted to just sleep with her, but was with her housemates. Throughout the night my drive died and I started to get anxious about that. The cortisol started flowing and that was lights out. My boners were weak and numb - just like at the heart of PSSD. I told her I was feeling sick and wanted to go to bed when she was trying to take my clothes off and have sex. Woke up this morning with number **** and a weak ass morning wood. FML.
But I’m starting to realize that hiding my head in a Serotonin book all day isn’t getting me the answers. The answers come from connecting the body to the penis and letting the rest fall in place. Something that I was doing early this week was hitting all the right buttons. When you’re gaining back your confidence, loosing erections isn’t even a thought in your mind. You’re calm and confidence. Talking to my gf early last night when I was horny, I felt like a new me. I me that I haven’t seen in years.
I think I’m going to get a pump. I’ll amazon prime it here so I get it fast.
I’m gonna keep doing pelvic exercises, which I can share with anyone who would like. Just PM me.
Another thing I’ve thought about is getting a red light. CD used to talk about “sunning the boys” or something like that. You get NO and T moving with red light down there, and it would increase blood flow as well. I’m not sure of it yet, but something that I’m thinking of buying and trying.
This fibrosis CAN go away. I’ve seen Dr. Goldstein’s scans of it reverses for both PFS and PSSD patients. He uses PRP in the penis to attempt to speed this up, but it might be a mixture of pelvic floor changes and viagra/cialis that get blood flowing down there as well.
Dr. G also tends to see PFS and PSSD occur in people who hit an especially stressful time. It's like the cortisol or stress or something all comes together to make a perfect storm.
Anyways, you guys gave me some hope on a terrible day.
Cheers,
Ghost
I'll say... and I think I know someone who'll agree, R-Andro is a great addition to start feeling the DHT again... definitely complements the Cialis... 
