Concerned PFS Log

bruschi11

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@Concerned

Thinking of you man. And still free to talk tomorrow if you are capable of doing so.

I'm not going to tell stories here, but just think about the things you have to live for ahead of you in your past life. Remember all the good times and the people you love and realize that one day they're all going to look at you the same as they used to. You're going to be your old self again one day. That is the truth. Your going to have your old life again....

With that in hand- you're going to have this experience behind you. You're going to be able to say you climbed Everest essentially at least in your own mind.

Now add that to your internal resume.

When you beat this all man you'll be the happiest, most confident guy in your country. Please tell me you won't.

LOL there's a reason to go on and fight and get past this. I know you're in a horrible state- but there is that day I'm telling you about above ahead. You will get there man. Be strong.
 

tanedout

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Messages
538
Almost crying reading the responses here, I love you guys so much, I called my mum and got her to take me to the emergency hospital. I’m sat here with a drip in my arm in a hospital bed. Getting my gut checked, all sorts of tests, trying to hold in there mentally, thank you all so much for your support.

You're in the best place you can be right now, and getting hooked up to a drip should do you a world of good.

Your neutotransmitter levels will be absolutely all over the shop right now. I don't know if it's possible to get cerebrospinal fluid levels tested, but this 2017 study on PFS showed some significant findings;

Key findings of the study include broad effects on plasma and cerebrospinal fluid (CSF) neuroactive steroid levels observed in 14 PFS patients, as compared to 25 controls. Statistically significant decreased levels of DHT, pregnenolone, progesterone, 17-beta estradiol and dihydroprogesterone (DHP), and increased levels of DHEA, testosterone and 3-alpha diol were observed in the CSF of PFS patients.

Peripheral Nervous System Involved in PFS Patients with Severe ED, New Study Demonstrates - The Post-Finasteride Syndrome FoundationThe Post-Finasteride Syndrome Foundation

It may even be worth mentioning this study, or linking a doctor to it as it might help give them some idea of what is happening in your body right now.
 

bruschi11

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You're in the best place you can be right now, and getting hooked up to a drip should do you a world of good.

Your neutotransmitter levels will be absolutely all over the shop right now. I don't know if it's possible to get cerebrospinal fluid levels tested, but this 2017 study on PFS showed some significant findings;



Peripheral Nervous System Involved in PFS Patients with Severe ED, New Study Demonstrates - The Post-Finasteride Syndrome FoundationThe Post-Finasteride Syndrome Foundation

It may even be worth mentioning this study, or linking a doctor to it as it might help give them some idea of what is happening in your body right now.

I do not agree with this. They can't correct the above issue. And there are thousands of men living in this world with the above issue that got screwed up by fin and aren't having the severe problems @Concerned is having right now.

Something deeper is going on beyond PFS undoubtedly. PFS just allows disease to flourish.

I think that's something you need to tell doctors.
 

tanedout

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Messages
538
I do not agree with this. They can't correct the above issue. And there are thousands of men living in this world with the above issue that got screwed up by fin and aren't having the severe problems @Concerned is having right now.

Something deeper is going on beyond PFS undoubtedly. PFS just allows disease to flourish.

I think that's something you need to tell doctors.

I'm not suggesting they will be able to fix the issue based on this information, I'm just pre-empting the; "well all the tests look normal you must be fine" response from doctors.

If that does occur, then suggesting they explore other avenues based on the outcome of this study might be beneficial. That's one of the only studies I've seen on PFS where the outcome of the tests performed is absolutely clearcut with regards to a PFS patient vs control.
 

MNK99

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5,560
For sure avoid carbs... WORSE than a lot of meds even. FIN worse than Effexor. But bread is worse than a lot of things and I'd say (without addiction or pfs), even alcohol (real alcohol, non grain vodka). It all just goes to sugar, and bacteria, yeast, etc, feed on that - destroying digestion. I could probably eat some now, but mentally I feel bad bc it breaks discipline. I first ate meat around 21-25 days after my long fast, maybe 30+ I can't remember, I did write it down on my log (convoluted, I admit). Hot plates of spinach, arugula, and then arugula and spinach cold, some rice eventually, eventually some eggs, etc. I cheated at times, but 1-3 x and not before 18-21 days, as I was scared to lose progress or that something could go wrong.
 

Concerned

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159
Around 9 hours in the hospital today. Blood tests, urine test, ultrasound on my stomach, x-ray on my chest (they said they can detect some stomach problems from there somehow I think). As you might have expected, all came back normal. But, I’ve been referred to a gastroenterologist, probably for a colonoscopy and an endoscopy. That should be interesting, a guy on swole source with pfs said he had these done and some things were wrong in his colon I think.

Again, thank you for the support guys. This morning was terrible, been semi-delirious in the hospital today. Will try to get some sleep soon.
 

Helen

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5,415
Around 9 hours in the hospital today. Blood tests, urine test, ultrasound on my stomach, x-ray on my chest (they said they can detect some stomach problems from there somehow I think). As you might have expected, all came back normal. But, I’ve been referred to a gastroenterologist, probably for a colonoscopy and an endoscopy. That should be interesting, a guy on swole source with pfs said he had these done and some things were wrong in his colon I think.

Again, thank you for the support guys. This morning was terrible, been semi-delirious in the hospital today. Will try to get some sleep soon.


Contact Tubzy in PM, he will give you my skype. I will help you.
 

Concerned

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Messages
159
Contact Tubzy in PM, he will give you my skype. I will help you.

This means more than I can express. Thank you so much. I am trying to conserve energy right now, spending most of the time in bed but I will try to get this arranged as soon as possible and of course when is right for you.
 

wuf

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Messages
880
Contact Tubzy in PM, he will give you my skype. I will help you.
I do apreciate for your help Helen, but really...I do not understand the reason you decide to help here and there, I mean that is fine, you do whatever you want but...I just want to point it out that me and others are here from 1 year long and do you think I do not have delirious morning where I can't even breath, where I can't eat, I can't sleep at all (it is 2 months I am sleeping 3hours per nioght), I am thinking about suicide every day.... so why not helping me as well by skype?!
I have soring nerves everyday and at time I even can not walk...etc...so many stuff going on but I just stopped to cry, and or stay alive or go for suicide.
 

Helen

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I do apreciate for your help Helen, but really...I do not understand the reason you decide to help here and there, I mean that is fine, you do whatever you want but...I just want to point it out that me and others are here from 1 year long and do you think I do not have delirious morning where I can't even breath, where I can't eat, I can't sleep at all (it is 2 months I am sleeping 3hours per nioght), I am thinking about suicide every day.... so why not helping me as well by skype?!
I have soring nerves everyday and at time I even can not walk...etc...so many stuff going on but I just stopped to cry, and or stay alive or go for suicide.

I help people that I feel I can help. You told me yourself you dont want to experiment and I can help people who can experiment. I am not going to give him precise regimen , it will be a lot of experimentation.
 

Slayo

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Messages
534
I do apreciate for your help Helen, but really...I do not understand the reason you decide to help here and there, I mean that is fine, you do whatever you want but...I just want to point it out that me and others are here from 1 year long and do you think I do not have delirious morning where I can't even breath, where I can't eat, I can't sleep at all (it is 2 months I am sleeping 3hours per nioght), I am thinking about suicide every day.... so why not helping me as well by skype?!
I have soring nerves everyday and at time I even can not walk...etc...so many stuff going on but I just stopped to cry, and or stay alive or go for suicide.

Agree, i'm near to suicide too, and i tried everything in these 4 years
 

wuf

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Messages
880
I help people that I feel I can help. You told me yourself you dont want to experiment and I can help people who can experiment. I am not going to give him precise regimen , it will be a lot of experimentation.
Yes, I know man, I don't want to discuss this, but I would also try something if someone could suggest me for my case.
I know about ARL etc..but wow, it is getting so long even to just talk with catherine since I am in europe.
By the way, if you would want to give me some tips, I could try it.
Do not get offense if I ask, it is really a tired situation for me...not sleeping for really 2 months.
So, up to you, if you want.
 

Slayo

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Messages
534
Yes, I know man, I don't want to discuss this, but I would also try something if someone could suggest me for my case.
I know about ARL etc..but wow, it is getting so long even to just talk with catherine since I am in europe.
By the way, if you would want to give me some tips, I could try it.
Do not get offense if I ask, it is really a tired situation for me...not sleeping for really 2 months.
So, up to you, if you want.

I remember you are italian right ? I can ship you an hair test kit, so you don't have to wait for Catherine, i ordered more than one that's why i have some at home, i can give you the link for the hydrogen machine on amazon so you have a 30 days trial, later i send a pm
 

Slayo

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Messages
534
I help people that I feel I can help. You told me yourself you dont want to experiment and I can help people who can experiment. I am not going to give him precise regimen , it will be a lot of experimentation.

i want to experiment, if you want to help me personally i'm all about experimenting, i tried almost everyrhing during these 4 years
 

freeflow

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Messages
302
Yes, I know man, I don't want to discuss this, but I would also try something if someone could suggest me for my case.
I know about ARL etc..but wow, it is getting so long even to just talk with catherine since I am in europe.
By the way, if you would want to give me some tips, I could try it.
Do not get offense if I ask, it is really a tired situation for me...not sleeping for really 2 months.
So, up to you, if you want.

I can help you to get a hair test from ARL with slayo's hair test kit. Im in Europe.
But i cannot chat about it, just can give you the full report and the supplement list and you do whatever you want with their interpretations. Deal?
 

Helen

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Staff member
Messages
5,415
Yes, I know man, I don't want to discuss this, but I would also try something if someone could suggest me for my case.
I know about ARL etc..but wow, it is getting so long even to just talk with catherine since I am in europe.
By the way, if you would want to give me some tips, I could try it.
Do not get offense if I ask, it is really a tired situation for me...not sleeping for really 2 months.
So, up to you, if you want.

Wuf, buddy. I just talked to Catherine , she got messages from a couple of people just within 2 days. She will answer them today.
 

noprop

Well-Known Member
Messages
499
i want to experiment, if you want to help me personally i'm all about experimenting, i tried almost everyrhing during these 4 years

Have you done stool test?
Have you had gluthathione tested?
Have you had IV of gluthathione and aminos?