Ella
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The hairloss didn't pick up until after I stopped. It is still going strong. How is yours?
Yeah mine only got going once I had stopped. It kept going for a good few months but I moved onto zinc, histidine, cysteine, magnesium and magnese last week and it stopped pretty much straight away. I added potassium a few days in and that certainly didn't make anything worse. Ive stopped taking anything after 8 or 9 days on that protocol but the hair loss hasn't started again
What other effects did you notice on the protocol and what stuck after you stopped ?
I want to share my experience about Ella. I took it exactly 1 week ago, 1 single dose of 6-7 mg.
I fell asleep easier than other times around 10 pm. Woke up at 2 am and couldnt sleep back till 6 in the morning. Had suicidal thoughts, depression etc with crazy insomnia.
I started taking shilajit the next day and pine pollen and i got pretty much back to the normal pfs baseline that I have.
I theorize that ella acted the same way for me as fin would do. 50% might make you better or worse, depending on how it acts on the receptors and how your progesterone receptors are.
I will not be touching it again.
I fell asleep easier than other times around 10 pm. Woke up at 2 am and couldnt sleep back till 6 in the morning. Had suicidal thoughts, depression etc with crazy insomnia.
I started taking shilajit the next day and pine pollen and i got pretty much back to the normal pfs baseline that I have.
I theorize that ella acted the same way for me as fin would do. 50% might make you better or worse, depending on how it acts on the receptors and how your progesterone receptors are.
I will not be touching it again.
MNK99
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Within a couple of hours of taking the protocol I felt more relaxed and felt mild surges of libido which lessened but remained for the next three days. My concentration improved and I didn't need to take a sleeping pill for the next 3/4 days and didn't wake up at 4am which I usually do. My blurred vision and general feeling around my eyes improved almost instantaneously and fatigue in general improved.
I think the protocol helped with body temperature. Muscle aches and joint pain, which was always bad in the morning, also improved.
After about 4 days these improvements began to lessen and by the end of the week we're pretty negligible.
Since stopping I have had to start using sleeping pills again but do sleep better. My vision seems to have been improved by the protocol as well. As has body temperature and a mild improvement in the fatigue and body aches.
Hope that helps.
cnb30
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Ironically, I think some people (Including me) tend to have suicidal thoughts when they are feeling better, because they are more mentally aware of everything that has happened, and what they have lost. I also occaisonally used to have a wider range of emotion for short periods as well, which can lead to that kind of thinking.
Hi! Girl here. I will do an intro about my history soon. But wanted to share my experience with the Ella trial. I have been suffering with cfs for 10 yrs now after lexapro use. Many other symptoms that you all describe as well. But the fatigue is disabling:
What I noticed while on:
Fatigue improved
Sleepiness in morning significantly imoroved
Had insomnia while on
Gigestion improved
Hair seems thicker and softer
Started feeling more depressed, which was a welcome change to apathy
So on about the fifth day of my very bad attempt at splitting in to sixths, I had an amazing couple of hours. Al fatigue lifted. But it was also as if I could remember and feel the way I used to: sort of like how a smell will remind you of something. Hard to explain, but it was very apparent. And also sort of frightening to realize how far gone I really am from who I used to be.
So a couple of days after I stopped, I was hot with crushing fatigue. This lasted for about a week, and I returned to a slightly improved baseline. But I will tell you at about ten days after, my libido seriously spiked. It’s not a problem I focus on as much as the fatigue, but it was very obvious that it was higher. And so far it seems to be staying and I’m at two weeks since the last pill. I will keep you all posted.
I’m actually trying to convince a doc to let me stay on esmya which is the 5 mg pills for a while. Of course I will let you know how that goes. My reasoning is that I seemed to get a lot of benefit while on it. I think all we can do is try different combinations and dosages, lengths of time until something sticks.
I also tried RU a few years ago I will write my experience in that when I have more time.
Thanks to you all for sharing your experiences, makes me feel not so alone.
What I noticed while on:
Fatigue improved
Sleepiness in morning significantly imoroved
Had insomnia while on
Gigestion improved
Hair seems thicker and softer
Started feeling more depressed, which was a welcome change to apathy
So on about the fifth day of my very bad attempt at splitting in to sixths, I had an amazing couple of hours. Al fatigue lifted. But it was also as if I could remember and feel the way I used to: sort of like how a smell will remind you of something. Hard to explain, but it was very apparent. And also sort of frightening to realize how far gone I really am from who I used to be.
So a couple of days after I stopped, I was hot with crushing fatigue. This lasted for about a week, and I returned to a slightly improved baseline. But I will tell you at about ten days after, my libido seriously spiked. It’s not a problem I focus on as much as the fatigue, but it was very obvious that it was higher. And so far it seems to be staying and I’m at two weeks since the last pill. I will keep you all posted.
I’m actually trying to convince a doc to let me stay on esmya which is the 5 mg pills for a while. Of course I will let you know how that goes. My reasoning is that I seemed to get a lot of benefit while on it. I think all we can do is try different combinations and dosages, lengths of time until something sticks.
I also tried RU a few years ago I will write my experience in that when I have more time.
Thanks to you all for sharing your experiences, makes me feel not so alone.
When I came off ssri my cortisol was really high. I was really obsessed with cortisol and hpa for the first years that my cfs started. And I still feel this is a huge aspect of what happens to us after using ssri. I was looking for ways to block cortisol, and read about ru. And how it can reset hpa. So I ordered some, and I can’t exactly remember when I first tried. But the pills were 200 mg and I had a bunch of them. Wish I could still get that many! And i didn’t know how to dose so I think I took a pill a day for about a week. First three days I felt amazing my symptoms were mostly gone. Then I think it crushed my cortisol and I got horribly fatigued.
Then I remember playing with dosages and stuf a couple of times but always ran in to same problems. And looking back I was just taking way too much.
Crazy story. So the last time I took was a few years ago. After about the third day of taking, I got the worst migraine I have ever had. I remember thinking that it blocks progesterone. So I covered myself in progesterone cream. And the migraine from hell went away. Well about two weeks later I found out I was 17 weeks pregnant. And my son is a healthy three year old. Yes. I took an abortion pill, not knowing I was pregnant, and saved his life with progesterone cream. Wtf, right? I’m so thankful I had that progesterone cream on hand.
Another thing tag I took to block cortisol is diflucan. They use this in cushing’s to block cortisol. I had a very similar feeling on it as ru. First week, amazing. Then that low cortisol feeling hits. But I don’t see many of you guys trialing this, and I think it definitely has its place in pssd. Especially when you don’t suffer from cfs as I do.
I would like to try ru again, but in micro doses. Like 5/10 mg. I was so traumatized that I had used it while pregnant, that I threw the rest of the pills out. Kicking myself, it’s expensive. Don’t know how I had so many.
One more thing to add, I was pretty much back to normal while pregnant. And horny as hell. Not fun when youre a single mama!
Then I remember playing with dosages and stuf a couple of times but always ran in to same problems. And looking back I was just taking way too much.
Crazy story. So the last time I took was a few years ago. After about the third day of taking, I got the worst migraine I have ever had. I remember thinking that it blocks progesterone. So I covered myself in progesterone cream. And the migraine from hell went away. Well about two weeks later I found out I was 17 weeks pregnant. And my son is a healthy three year old. Yes. I took an abortion pill, not knowing I was pregnant, and saved his life with progesterone cream. Wtf, right? I’m so thankful I had that progesterone cream on hand.
Another thing tag I took to block cortisol is diflucan. They use this in cushing’s to block cortisol. I had a very similar feeling on it as ru. First week, amazing. Then that low cortisol feeling hits. But I don’t see many of you guys trialing this, and I think it definitely has its place in pssd. Especially when you don’t suffer from cfs as I do.
I would like to try ru again, but in micro doses. Like 5/10 mg. I was so traumatized that I had used it while pregnant, that I threw the rest of the pills out. Kicking myself, it’s expensive. Don’t know how I had so many.
One more thing to add, I was pretty much back to normal while pregnant. And horny as hell. Not fun when youre a single mama!
Can I ask any of you where I could order esmya? It’s the same as Ella but it comes in 5mg pills and more of them. I think I’m just going to go ahead and order. After my appt yesterday with endo I think it’s going to be hard to convince anyone to prescribe off label. And I’m just tired of dealing with docs and there blank faces when I tell them what has happened to me and what I’m trying to accomplish.
One more thing I wanted to mention and see if anyone has tried is pueraria mirifica. I believe it’s similiar in some ways to kudzu. This was one other thing that helped with all symptoms and really increased libido. Problem was I couldn’t make it stick after first couple of weeks, and it started making me feel worse. It’s an herbal estrogen, and woman and some men use to grow breasts. But in large doses. But it’s more similar to estriol than estradiol. Which is the good estrogen. I see a lot of people talking about estrogen helping, and this may be a safe way to try how estrogen feels. Nettle root also helped me but affects faded after a month. It binds to shbg and mine was very high. I know there are differences as I am female. But the pm did something in my brain that was very beneficial for a while. And it also made my weight drop down. I’ve had a fat belly every since ssri and no amount of diet would touch. Seemed to just melt off on the pm. It really made me feel very sexual and high libido, I would be curious if it helped any of you.
Those are most of the things I can think of that are worth looking in to that I can contribute. I have tried a ton over these past years. And inositol was another I thought cured me, but again couldn’t make it stick.
One more thing I wanted to mention and see if anyone has tried is pueraria mirifica. I believe it’s similiar in some ways to kudzu. This was one other thing that helped with all symptoms and really increased libido. Problem was I couldn’t make it stick after first couple of weeks, and it started making me feel worse. It’s an herbal estrogen, and woman and some men use to grow breasts. But in large doses. But it’s more similar to estriol than estradiol. Which is the good estrogen. I see a lot of people talking about estrogen helping, and this may be a safe way to try how estrogen feels. Nettle root also helped me but affects faded after a month. It binds to shbg and mine was very high. I know there are differences as I am female. But the pm did something in my brain that was very beneficial for a while. And it also made my weight drop down. I’ve had a fat belly every since ssri and no amount of diet would touch. Seemed to just melt off on the pm. It really made me feel very sexual and high libido, I would be curious if it helped any of you.
Those are most of the things I can think of that are worth looking in to that I can contribute. I have tried a ton over these past years. And inositol was another I thought cured me, but again couldn’t make it stick.
Shadow
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Oh ok, yeah cortisol was discussed here a lot, and my problems are far from only PSSD... I took lexapro too.
I dont know if you read, but neurosteroids are one of the things that can maybe play a role in our condition, one of them in special, allopregnanolone(its production is severely modulated by ssris), while pregnant, allopregnanolone rises continuously until delivery, so maybe this explains why you felt normal.