Going back on Accutane...

[Minime]

I understand the nutritional balancing part man and it sucks with the shrinkage. I get horrible constipation when i push minerals too hard.

I think in cases like ours where pushing minerals hard, we just have to take foot off gas. Like instead of taking 3 times daily, maybe just once at night. Or just once every 3 or 4 days (what I’m currently doing). It’s just something to keep system strong and trending in correct direction.

We don’t have to go on full on NB program, but we can push body in correct direction and utilize the the hair test quite effectively.

What I do is take everything into account when it comes to fixing a person. Most important things in no particular order to me are nutritional balance, gut bacteria, liver health, pathogens/fungus/SIBO and their toxic die off, toxicities, heavy metals, and very little more to worry about really.

You must see when the above is in line, no matter who you are, imbalances like what present to you will dissolve. This is the essence of holistic health (I like to call it realistic health)- that there is a way of looking at the whole body and seeing a collection of attributes that can be directed in correct direction.

I don’t know if you’re into sports but I like to compare this to say a young basketball player (NBA Draft tonight baby!). Say you have a guy with a decent all around game, not great but good well rounded player and he can’t shoot a lick. No 3 pt shot in a league where the 3 pt shot is required. (Looking at you Romeo Langford.) That player is not going to end up making it in the league. Theres a certain functionality that this league requires for good but not great players and shooting is one of them.

Well maybe everything in your system is working decently and there’s one big outlier just like that. Maybe it’s a fungus, one toxin, one thing sending your immune system in the incorrect direction. All we know is that something is offsetting your health drastically and keeping you from being the person that you want to be. Just like a required 3 pt shot for a ball player that isn’t there. Something is holding you back.

The thought of working with a dermatologist at this point in time is basically throwing in the towel on a very possibly if not likely happy life one day in the not too distant future. That is a fact- I think we all know that.

Again, I’ve presented organic acids testing to you on more than one occasion now. You said you are getting zero help from this forum. But here it is... go look at organic acids to get another further view as to what can be behind your problems. Post results here and we can really see what might be ailing you.

Great Plains organic acids is what I use.

@bruschi11
I appreciate the guidance and I will look into the organic testing. I have an appointment with my Naturopath in a few weeks to discuss it with him. I am working on rebuilding my gut bacteria after the round of antibiotics.
I don’t understand your comment, “you said you are getting zero help from this forum”. If you mean that nothing yet has seemed to work for me, that is essentially true. I still have all the sexual sides and muscle wasting. I do think that some of my memory has improved but it is moderate at best. If, however, you mean I don’t feel this forum is helpful, that could not be further from the truth. I sincerely appreciate everyone on this forum and consider this forum as my number one source for health/help. I pray for everyone on this forum as I want to see everyone get back to health. I may not post on this forum as much as many others, but I still feel a strong sense of brotherhood among all of us suffering from PFS/PAS and I continue to be extremely thankful and appreciative towards everyone on this forum.
As you and others have pointed out, I have not tried everything suggested to me yet so I will look into these other avenues before subjecting myself to Accutane again. Everyone who has responded to this thread has been very helpful and I am appreciative of that.

 

[Orion]

I hear you. I understand that about the vitamin A saturation. It’s just my scalp and face are so bad, and now the rest of my body is showing rash/acne as well. I’m just lost. And so is my doctor unfortunately. Still, I haven’t tried fasting yet so maybe I’ll do that before jumping on Accutane.

Yes definitely try some water fasting it is a super fast way to dump vitamin A out of the system, just make sure you are stocked up on zinc and taurine before from diet. Both help with excretion of VA from the body.

 

[Orion]

Good to hear you're doing well. How many weeks have you been on the no vitamin A diet for now?

Close to 8 months now, liver and fat tissue can store upwards of 1-2 years worth of vitamin A, plus carotenoid storage. I did accutane, cod liver oil, liver, high dose retinyl palmitate, ray peat diet(dairy, carrots...), so complete overload. Going to give it 2yrs, but all my symptoms are fading, and skin color is coming back to normal, didn't realize how yellow/orange I had become!

 

[bruschi11]

@bruschi11
I appreciate the guidance and I will look into the organic testing. I have an appointment with my Naturopath in a few weeks to discuss it with him. I am working on rebuilding my gut bacteria after the round of antibiotics.
I don’t understand your comment, “you said you are getting zero help from this forum”.

I worded that incorrectly and it may have made me sound aggressive, forceful and I’m sorry if that’s case as it wasn’t my intention. The zero help part.

I’m really glad you are going to be working with naturopath and analyzing gut. With a history of antibiotic use, only one BM a day and just sluggish, fatigue, skin issues. It just makes so much sense to me that righting this is what will put you in correct direction.

Yea mention the organic acids to naturopath. They are getting a lot more common recently, a lot of practitioners are using them.

Best of luck man. I really want you to beat this man. in my mind the odds are extremely high that you can get better.

 

[Aleksandr]

Right, but labs don't show the entire estrogen picture.. you can still be estrogen dominant with normal levels especially with androgen issues.. Dim merely helps escort out the bad estrogen.. I don't think you can get too low.

On the gut issue.. lots of people with oily skin don't have acne.. sure it's usually present when there Is acne but not as a stand alone factor. It's a bacterial imbalance.. working on the gut regulates that.
Also herbal surfacants might help like yucca root.. surfacants and saponins clean the cells of excess bacteria.. I met a woman that was a distributor for a product called immusist.. it's liquid surfacants.. she was sold on it because her son had terrible hormonal acne and it completely cleared it.. she gave me a bottle.. it's kind of soapy. When u mix it with water.. you might find the ingredients and go with the less expensive herbals

did you come up with the gut protocol in your signature?

 

[Aleksandr]

Close to 8 months now, liver and fat tissue can store upwards of 1-2 years worth of vitamin A, plus carotenoid storage. I did accutane, cod liver oil, liver, high dose retinyl palmitate, ray peat diet(dairy, carrots...), so complete overload. Going to give it 2yrs, but all my symptoms are fading, and skin color is coming back to normal, didn't realize how yellow/orange I had become!

Have yougot any before / after pics of your skin? :O

IS acne fading / oily skin leaving?

 

[Minime]

I worded that incorrectly and it may have made me sound aggressive, forceful and I’m sorry if that’s case as it wasn’t my intention. The zero help part.

I’m really glad you are going to be working with naturopath and analyzing gut. With a history of antibiotic use, only one BM a day and just sluggish, fatigue, skin issues. It just makes so much sense to me that righting this is what will put you in correct direction.

Yea mention the organic acids to naturopath. They are getting a lot more common recently, a lot of practitioners are using them.

Best of luck man. I really want you to beat this man. in my mind the odds are extremely high that you can get better.

No worries bro! Appreciate all the guidance. I’ve actually been working with a Naturopath for 3 years now. Done all the gut testing...everything came back pretty good...but I think I need to do some repair now just because of the recent antibiotic I was on not too long ago. Currently on a protocol to get my adrenals working better. Will be getting his thoughts on the organic acids at my next appointment.
Thanks!

 

[Minime]

Yes definitely try some water fasting it is a super fast way to dump vitamin A out of the system, just make sure you are stocked up on zinc and taurine before from diet. Both help with excretion of VA from the body.

Are you following a specific protocol when fasting to remove vitamin A? I will look into foods with zinc and taurine.

 

[Ocguy]

did you come up with the gut protocol in your signature?

When I had my first major pfs crash it was accompanied by mold poisoning.. I couldn't detox and a round of antibiotics for a tooth infection blew up my gut.. for years I was miserable. Bloating , burping, etc.. I tried everything nothing would help except diet.. I went paleo for 6 months straight.. lost a bunch of weight. But when. I cheated a little it all came back.. I stumbled across a blog post from a site called animalpharm that's where I found it.. after the first week the burping started going away and i was farting.. lol. But that was to be expected. . Finally the sibo was clearing and my lower colon was getting fed.. it totally cured me..

since then I've given it to several people and the ones that stick with it report miracles.. it helps even If u do it once in a while but it's not designed for that.. if u want to cure allergies, skin breakouts, constipation , diarrhea, etc.. this is it.. eventually you get what's called a bifido bloom.. all your good bacteria get fed and your body just works so much better.. it doesn't cure everything obviously with pfs
. But it makes life better.. to the avg person though, it has even more remarkable results

 

[Orion]

Are you following a specific protocol when fasting to remove vitamin A? I will look into foods with zinc and taurine.

No protocol, just plain old water fasting, so nothing but water. I did 3, 7, 10, and 20 day water fasts, really helped my skin at the time, many things are happening in a fasted state, but I now believe depleting vitamin A stores is a big part of the positives from it.

I did a longer 54 day Bruess fast, but realized after the Breuss juice contains lots of plant vitamin A, would have been better to have just done water fasting.

 

[Niles]

When I had my first major pfs crash it was accompanied by mold poisoning.. I couldn't detox and a round of antibiotics for a tooth infection blew up my gut.. for years I was miserable. Bloating , burping, etc.. I tried everything nothing would help except diet.. I went paleo for 6 months straight.. lost a bunch of weight. But when. I cheated a little it all came back.. I stumbled across a blog post from a site called animalpharm that's where I found it.. after the first week the burping started going away and i was farting.. lol. But that was to be expected. . Finally the sibo was clearing and my lower colon was getting fed.. it totally cured me..

since then I've given it to several people and the ones that stick with it report miracles.. it helps even If u do it once in a while but it's not designed for that.. if u want to cure allergies, skin breakouts, constipation , diarrhea, etc.. this is it.. eventually you get what's called a bifido bloom.. all your good bacteria get fed and your body just works so much better.. it doesn't cure everything obviously with pfs
. But it makes life better.. to the avg person though, it has even more remarkable results

I can vouch for this protocol. I'm actually about to hop back on it, because after I felt my gut was better I dropped it completely. Needless to say, things have slipped a bit so I need a refill lol. Definitely works, though.

 

[Orion]

Have yougot any before / after pics of your skin? :O

IS acne fading / oily skin leaving?

I get acne(blackheads, pimples) all over back, upper chest, arms, neck, face and scalp. Had redness all over face, severe dandruff, excessive dry flaky skin combined with excessive oiliness. Never got many big or deep cysts, so no scaring.

All these symptoms are fading, but the journey continues to 100%. Its hard to measure the oiliness, but if I blot my face at the end of the day, about 10hrs after a shower, the blot paper is about 50% less translucent, than back when I would blot before all this, major improvement.

 

[blindsided]

When I had my first major pfs crash it was accompanied by mold poisoning.. I couldn't detox and a round of antibiotics for a tooth infection blew up my gut.. for years I was miserable. Bloating , burping, etc.. I tried everything nothing would help except diet.. I went paleo for 6 months straight.. lost a bunch of weight. But when. I cheated a little it all came back.. I stumbled across a blog post from a site called animalpharm that's where I found it.. after the first week the burping started going away and i was farting.. lol. But that was to be expected. . Finally the sibo was clearing and my lower colon was getting fed.. it totally cured me..

since then I've given it to several people and the ones that stick with it report miracles.. it helps even If u do it once in a while but it's not designed for that.. if u want to cure allergies, skin breakouts, constipation , diarrhea, etc.. this is it.. eventually you get what's called a bifido bloom.. all your good bacteria get fed and your body just works so much better.. it doesn't cure everything obviously with pfs
. But it makes life better.. to the avg person though, it has even more remarkable results

I was going to ask the same question as to how you came up with this gut protocol. A couple of additional questions though:

Were your gut issues caused by fin/PFS or by the antibiotics?

I assume the several other people that reported miracles using this were not PFS people?

Has anyone with PFS (besides yourself) tried this gut protocol with any success? I mean specific to helping with gut issues caused by fin/PFS.... Seems like a simple protocol to try.

Thanks for any additional information.

 

[Ocguy]

I was going to ask the same question as to how you came up with this gut protocol. A couple of additional questions though:

Were your gut issues caused by fin/PFS or by the antibiotics?

I assume the several other people that reported miracles using this were not PFS people?

Has anyone with PFS (besides yourself) tried this gut protocol with any success? I mean specific to helping with gut issues caused by fin/PFS.... Seems like a simple protocol to try.

Thanks for any additional information.

No, my gut was already struggling.. my pfs crash coincided with breathing in mold though.. so I got deathly ill. Doesn't matter if you have pfs or not, your using brute force to fix your gut. Bad bacteria in the small intestine are gonna get trapped and stuck in the resistant starch and the good guys no matter how decimated from years of toxic abuse are going to get fed.. yeah it works better for non pfs because they typically don't have a persistant hormonal or immune imbalance.. so they don't need as much or any maintenance

 

[JasonSky]

No, my gut was already struggling.. my pfs crash coincided with breathing in mold though.. so I got deathly ill. Doesn't matter if you have pfs or not, your using brute force to fix your gut. Bad bacteria in the small intestine are gonna get trapped and stuck in the resistant starch and the good guys no matter how decimated from years of toxic abuse are going to get fed.. yeah it works better for non pfs because they typically don't have a persistant hormonal or immune imbalance.. so they don't need as much or any maintenance

Interesting, did you get this idea from Helen or are you doing some research on your own? But that sounds interesting has it been helping you at all so far?

 

[Ocguy]

Interesting, did you get this idea from Helen are doing some research on your own? But that sounds interesting has it been helping you at all so far?

No. I came across the protocol in 2014.. yes it's totally helped.. it saved my life. I couldn't digest anything without terrible discomfort, and it's definitely helped assimilation of nutrients

 

[Aleksandr]

When I had my first major pfs crash it was accompanied by mold poisoning.. I couldn't detox and a round of antibiotics for a tooth infection blew up my gut.. for years I was miserable. Bloating , burping, etc.. I tried everything nothing would help except diet.. I went paleo for 6 months straight.. lost a bunch of weight. But when. I cheated a little it all came back.. I stumbled across a blog post from a site called animalpharm that's where I found it.. after the first week the burping started going away and i was farting.. lol. But that was to be expected. . Finally the sibo was clearing and my lower colon was getting fed.. it totally cured me..

since then I've given it to several people and the ones that stick with it report miracles.. it helps even If u do it once in a while but it's not designed for that.. if u want to cure allergies, skin breakouts, constipation , diarrhea, etc.. this is it.. eventually you get what's called a bifido bloom.. all your good bacteria get fed and your body just works so much better.. it doesn't cure everything obviously with pfs
. But it makes life better.. to the avg person though, it has even more remarkable results

Sounds like a similar story to me.

When i go keto / low carb my stools are really good, no digestive issues etc. But as soon as i start eating higher carb and sugars im back to square one


I don't get many burping issues though mostly gas

 

[Ocguy]

This protoco

Sounds like a similar story to me.

When i go keto / low carb my stools are really good, no digestive issues etc. But as soon as i start eating higher carb and sugars im back to square one


I don't get many burping issues though mostly gas

You'll pass gas in the beginning, but it's your good bacteria fermenting..

 

[Aleksandr]

When I had my first major pfs crash it was accompanied by mold poisoning.. I couldn't detox and a round of antibiotics for a tooth infection blew up my gut.. for years I was miserable. Bloating , burping, etc.. I tried everything nothing would help except diet.. I went paleo for 6 months straight.. lost a bunch of weight. But when. I cheated a little it all came back.. I stumbled across a blog post from a site called animalpharm that's where I found it.. after the first week the burping started going away and i was farting.. lol. But that was to be expected. . Finally the sibo was clearing and my lower colon was getting fed.. it totally cured me..

since then I've given it to several people and the ones that stick with it report miracles.. it helps even If u do it once in a while but it's not designed for that.. if u want to cure allergies, skin breakouts, constipation , diarrhea, etc.. this is it.. eventually you get what's called a bifido bloom.. all your good bacteria get fed and your body just works so much better.. it doesn't cure everything obviously with pfs
. But it makes life better.. to the avg person though, it has even more remarkable results

is this the site? Animal Pharm

 

[Ocguy]

is this the site? Animal Pharm

Yes, but it looks like several posts have been deleted.. they do have a similar protocol on the bottom post.. maybe use the way back machine at archive.org to see if u can read those missing posts from the past