New log, experimenting - Nina

[Nina]

Maybe you should have more magnesium based on your hair test, its supposed to be really important for active people. Stress (including physical) increases the magnesium burn rate. Maybe since your diet is restrictive you should get it through an electrolyte supp? I have one called 'genesis sea minerals' which i have just when playing tennis, but i used to have it all day in place of water when i first started having it.

Hmm i dont know. Magnesium makes me groggy and sluggish. Helps with DOMS though. I bought bouillon cubes again today to get more sodium in, maybe up to 10gr salt/day

 

[Aleksandr]

Hmm i dont know. Magnesium makes me groggy and sluggish. Helps with DOMS though. I bought bouillon cubes again today to get more sodium in, maybe up to 10gr salt/day

Hmm yeah it might do that. Is it super bad groggy? Maybe good before bed to help sleep.

Its strange your calcium is higher than your magnesium because your diet is so low in carbs - this usually makes the mg higher than ca. But physical stress will make Ca and Na higher anyway.

 

[Aflac94]

@Nina didnt we conclude you are anemic? What was the scale for your results , like if you got 5 what was the lab range. Did you get a lab value with the Hgb called “MCV” and was that in range if so?

If you are anemic shouldn’t you get iron/feratin /B12/folate labs...or have someone try to treat your anemia

 

[Nina]

@Nina didnt we conclude you are anemic? What was the scale for your results , like if you got 5 what was the lab range. Did you get a lab value with the Hgb called “MCV” and was that in range if so?

If you are anemic shouldn’t you get iron/feratin /B12/folate labs...or have someone try to treat your anemia

Thats the problem, it doesn’t respond to anything. My doc tried everything to get my iron up but nothing works

 

[Aflac94]

Do you have more menstrual bleeding than normal ?

 

[Aflac94]

For those who are taking the iron supplement and do not have an obvious explanation for lack of an increase in hemoglobin level and iron stores, it may be prudent to screen for celiac disease and/or Helicobacter pyloriinfection, both of which have been implicated in reduced oral iron absorption. Celiac disease in particular has additional management implications if present

Some individuals whose anemia does not respond to oral iron due to an inflammatory block may benefit from IV iron. This has been demonstrated in various trials in various populations. As examples:

●A series of 812 patients with iron deficiency who were unable to tolerate oral iron or whose hemoglobin did not increase with oral iron were randomly assigned to receive IV iron (ferumoxytol, two 510 mg doses one week apart) versus placebo [83]. Compared with placebo, patients who received IV iron were more likely to have an increase in hemoglobin of ≥2 g/dL at week 5 (6 versus 81 percent). Other endpoints such as hemoglobin ≥12 g/dL and functional fatigue score also favored the IV iron arm

Other individuals may have additional diagnoses, either initially misdiagnosed as iron deficiency, concomitant with iron deficiency, or rarely, developing during treatment of iron deficiency. Examples include nutrient deficiencies (vitamin B12, folate), bone marrow abnormalities (myelodysplastic syndrome), inherited anemias (thalassemia, enzyme defects), hypothyroidism, other genetic conditions that affect iron balance such as iron-resistant iron deficiency anemia (IRIDA), and disorders associated with chronic inflammation.

 

[Aflac94]

Celiac disease, autoimmune gastritis, and Helicobacter pylori infection have been reported to interfere with absorption of oral iron. It has been reported that over half of patients with unexplained iron deficiency anemia are infected with H. pylori, and patients with H. pylori infection have a pooled odds ratio of iron deficiency of 2.8 compared with uninfected individuals [134]. In a series of 150 patients with unexplained iron deficiency anemia, there were eight newly diagnosed cases of adult celiac disease (5 percent); 40 cases (27 percent) of autoimmune gastritis, 22 of which were associated with previously undetected vitamin B12 deficiency (27 and 15 percent, respectively); and 77 cases of H. pylori infection, 29 of which had H. pylori as the sole abnormality detected (55 and 19 percent, respectively) [135]. Of 26 evaluable H. pylori-positive patients who had successful H. pylori eradication followed by administration of oral iron, 19 (73 percent) had a response, with mean increase in hemoglobin from 9.4 mg/dL to 13.5 mg/dL.

 

[noprop]

@Nina didnt we conclude you are anemic? What was the scale for your results , like if you got 5 what was the lab range. Did you get a lab value with the Hgb called “MCV” and was that in range if so?

If you are anemic shouldn’t you get iron/feratin /B12/folate labs...or have someone try to treat your anemia

MyMCV was in range, but high. Any idea?

 

[noprop]

Thats the problem, it doesn’t respond to anything. My doc tried everything to get my iron up but nothing works

Helen posted very interesting information why iron could be low. You must research.
A mitochondrial test done?

 

[mattyb]

Iron will stay low as long as you have an infection. Any infection will increase hepcidin, which inhibits the entry of iron into the body. Anemia is a common side effect of infection.

Seriously, it is EBV and you need to take steps to treat it. Otherwise you will stay anemic and tired. You are EBV positive, fatigued, and have frequently had swollen lymph nodes.

 

[Nina]

Iron will stay low as long as you have an infection. Any infection will increase hepcidin, which inhibits the entry of iron into the body. Anemia is a common side effect of infection.

Seriously, it is EBV and you need to take steps to treat it. Otherwise you will stay anemic and tired. You are EBV positive, fatigued, and have frequently had swollen lymph nodes.

But if thats it then why doesn’t my doc know any of this?

 

[Helen]

But if thats it then why doesn’t my doc know any of this?

How do you know anything about iron? you told me you never tested it.

 

[Nina]

How do you know anything about iron? you told me you never tested it.

Im talking about what matty is saying. I only have hb test

 

[mattyb]

@Nina

So your doc tested you Hb, saw it was low, and never followed up with an iron panel??

Time to get a new doc. That is ridiculously standard protocol.Very bad that he didn't follow it up.

 

[Helen]

@Nina

So your doc tested you Hb, saw it was low, and never followed up with an iron panel??

Time to get a new doc. That is ridiculously standard protocol.Very bad that he didn't follow it up.

I know it is totally ridiculous. They test her, find hemoglobin 5 which is really low. never test iron, and then give her stuff.




Matty did you read about an Italian dude, who cures MS totally by draining the vein in the head.

 

[Nina]

@Nina

So your doc tested you Hb, saw it was low, and never followed up with an iron panel??

Time to get a new doc. That is ridiculously standard protocol.Very bad that he didn't follow it up.

Lol yeah basically, they took blood from my finger and said hb is 5.

 

[mattyb]

I know it is totally ridiculous. They test her, find hemoglobin 5 which is really low. never test iron, and then give her stuff.




Matty did you read about an Italian dude, who cures MS totally by draining the vein in the head.

Yeah, I know all about that. Our province invested in a study with him, the outcomes after 2 years were very poor and we cut off funding as a result. I talked to a few people that received it, said it made them feel better for a few months but then they relapsed.

 

[mattyb]

Lol yeah basically, they took blood from my finger and said hb is 5.

Finger tip?? So they didn't even do a proper venous draw either?

Holy crap Nina, go find a new doctor. Get Hb and iron panel done. CRP if you can too.

 

[bruschi11]

If ketogenic diet mimicks fasting and fasting actually hurt @Helen ’s ability to battle viruses then don’t we have something here useful in hand @Nina ?

I would kick the Keto. Include rice, potatoes, oats, sprouted grains- Okinawa diet. You’ll still be eating what you’re eating but it will pull you out of that “fasting blood type” which is probably helping viruses live within you.

 

[Nina]

If ketogenic diet mimicks fasting and fasting actually hurt @Helen ’s ability to battle viruses then don’t we have something here useful in hand @Nina ?

I would kick the Keto. Include rice, potatoes, oats, sprouted grains- Okinawa diet. You’ll still be eating what you’re eating but it will pull you out of that “fasting blood type” which is probably helping viruses live within you.

Carbs make me sluggish, bloated and tired so im not doing that