Recovery Analysis Project

talkingant

Well-Known Member
Messages
125
Hello all,

I am starting a project to analyze recovery stories of PSSD, PFS, PAS, and related disorders. The goal is to find commonalities in recovery stories. With this information we can come up with an ordered list of what treatments are best to try, which could be customized based on what caused your disorder. The project will also serve as a central repository of recovery stories- as well as a place to document new recovery stories.

The methodology is currently as follows:
- Document recovery stories in a spreadsheet.
- Tag recovery stories with relevant tags (what they took, types of treatments, etc).
- Associate tags with "metatags." For example, stories that used ginko biloba or SJW would be tagged with "k-opiod antagonist."
- Calculate the most common tags with various filters on the data, like PSSD-only, PFS-only, all stories, etc.
- Explore theoretical implications of the analysis.
- Periodically publish reports on the results.
- Continue to accept new recovery stories into the data as they come.

Where I am right now:
- Spreadsheet designed (Google Sheets)
- Preliminary analysis code written (Google Apps Script - ES5 JS)
- ~70 recovery stories documented
- Preliminary metatag definitions

I am looking for people who want to contribute to the project. By becoming a contributor, you will get early access to the data. Here are some roles I am looking for:

Data entry
- Search the internet for relevant recovery stories and enter the data into a form
- Tag the story with relevant tags

Data checker
- Review and verify existing story data
- Verify accuracy of story tags

Researcher
- Assist with metatag definitions
- Assist with data analysis methodology
- Assist with report generation
- Explore theoretical implications of the data analysis

Developer
- Assist with spreadsheet design and analysis code
- Currently using Google Sheets and ES5 JS Google Apps Script

I am looking to build a team of contributors, such that we can have some preliminary reports available to the public within the next few months. If you would like to join the team, please reply with how you would like to contribute (roles or what skills/activities). You will need a google account so I can give you edit access to the spreadsheet. Please PM or email ([email protected]) your google account.

Please only join if you have the time to put in at least a few hours of work per week into this. I expect most of the work to be done within 3 months.

Eventually we will open up the spreadsheet for public viewing, and provide a form to submit new recovery stories. I am keeping it private for now to incentivize contributors and focus our time on dealing with the data/analysis. Until we have much more data/analysis, there isn't much to glean from it anyway.
 
Last edited:

barbaar

Well-Known Member
Messages
807
I'd be down for researcher/developer. I can write es5 no problem, python would be good as well I think. I can't promise how much I will be available though since uni has been taking up all my time lately.

I've been toying with the idea of collecting a hackstasis dataset for a while now. Not the same as your idea but I thought we could use hair and blood test results to find out what correlates to what symptoms, and what possible treatment options would be best. Kind of like our own PFS/PSSD/PAS specific TEI recommendation model )) But we'd need a ton more data for that than we have right now (and a lot more cured cases), and I'm still not sure if it would be feasible in the first place. One thing I thought could be interesting is doing a cluster analysis and looking if we can see the different cases in there. But I'm just thinking out loud.