Long term sufferers recovering?

[Sue.Denim]

Hi everyone,

I'm new here but unfortunately no stranger to PSSD.
Long story short, I'm completely med free since 2014 and I'm completely, and I mean COMPLETELY, asexual 4 and a half years later with no windows. I haven't been turned on since 2013 and I dont enjoy sex at all, ever. It's as if everything is turned off downstairs.

It's been so long since I was aroused that I cant even remember or imagine what arousal feels like. I'm in my 20s and had to fake it with every single guy until I just decided to be celibate altoghether, mostly because sex depresses me a lot as I get nothing out of it. As you can imagine, it's heartbreaking to say the least.

Does anyone know of any PSSD/PFS/PAS recovery stories in which the person had no windows/complete loss of sexuality for many years before improving?
Probably a shot in the dark but it's worth the shot at least. I feel so isolated in real life because of this condition, and I even feel isolated in the community because I seem to be the only one who doesn't see any windows, not even a little, not even a glimpse.

Anyway, thanks to whoever read my rant. I hope someone replies.

Thanks,

Sue

 

[bruschi11]

It took me 8 months to take any steps forward at all. Something was in the way. I was pfs but I don’t think if I touched that something that was stopping me, I’d be in the same spot 2.25 years later. I’m pfs.

I think some sort of none natural internal factor is blocking your body from going back to equilibrium. According to Eck and the nutritional balancing sciences, our bodies want to go back to normal. But if something’s in the way, you gotta get it out.

That something could be pathogens, viruses, toxins, heavy metals, mercury. Or Possibly a nutritional deficiency, excess, or imbalance.

Have a hair analysis ASAP. You won’t find much help on this forum without one.

 

[Sue.Denim]

"I was pfs but I don’t think if I touched that something that was stopping me, I’d be in the same spot 2.25 years later" what do you mean by this?

I have tried a few things, natural things, but maybe I didnt give them enough time. Maybe I need something stronger, like a medicine. Im afraid to try because Im afraid to fail. Catch 22! So maybe the reason Im not seeing windows yet is because I haven't really tried hard enough and it wont go away naturally.

Thank you for your response BTW

 

[Goose12]

"I was pfs but I don’t think if I touched that something that was stopping me, I’d be in the same spot 2.25 years later" what do you mean by this?

I have tried a few things, natural things, but maybe I didnt give them enough time. Maybe I need something stronger, like a medicine. Im afraid to try because Im afraid to fail. Catch 22! So maybe the reason Im not seeing windows yet is because I haven't really tried hard enough and it wont go away naturally.

Thank you for your response BTW

The only thing that will help is fixing your health and a hair analysis is one of the safest and easier ways. Hair Analysis (TEI Profile 2) - Test 38 Minerals & Toxic Metals

Here you can read some logs of people on tei and there experience https://hackstasis.com/forums/approved-protocols.98/

Here is a YouTube channel on nutritional balancing Deep Healing Space

I was the same as you, no windows of recovery. Things didn't start getting better until I started doing something. I still didn't have windows of 100%, it's just been a steady climb. Right now I am getting very close to being cured, and as far as I have come I know it's possible.

Are you currently on any protocols taking anything? It's best to not be taking anything for at least a couple of months before getting a hair test.

 

[joekool]

Welcome to the forum @Sue.Denim


We should be able to find something to get you some relief and results.

 

[joekool]

Have you tried any of the dhea products ? Trying to get a gauge of what you’ve responded to, even if a negative response, it helps narrow down where you stand

 

[RebelWithACause]

I would talk to the PSSD guys, see what they are doing.

Otherwise do TEI, stay on it for 6 months to see if that helps. There are guys with PSSD doing TEI - contact them for more info.

 

[Sue.Denim]

Hi,

Thank you everyone for your input, much appreciated!

@Goose12 Would a hair test work on dyed hair, do you know? I have about 11 years of dye in my hair, haven't been my natural colour since 2009.
That gave me a lot of hope, thanks so much. Was your case severe too? And what did you try that worked? It's great to hear you've made such huge recoveries. At the moment I'm taking Bio-Kult good bacteria capsules for gut health, Vitamin D+K2 spray, and Choline and Inositol capsules. Thinking of starting Wellbutrin soon but I'm scared.

@joekool Thank you Joe, great to hear What is dhea?

@RebelWithACause Will do, thanks. The thing is that different things work for others and idek what to take. What is TEI?

 

[RebelWithACause]

Hi,

Thank you everyone for your input, much appreciated!

@Goose12 Would a hair test work on dyed hair, do you know? I have about 11 years of dye in my hair, haven't been my natural colour since 2009.
That gave me a lot of hope, thanks so much. Was your case severe too? And what did you try that worked? It's great to hear you've made such huge recoveries. At the moment I'm taking Bio-Kult good bacteria capsules for gut health, Vitamin D+K2 spray, and Choline and Inositol capsules. Thinking of starting Wellbutrin soon but I'm scared.

@joekool Thank you Joe, great to hear What is dhea?

@RebelWithACause Will do, thanks. The thing is that different things work for others and idek what to take. What is TEI?

TEI is a hair test + nutritional balancing. Mineral balancing.

You need clean hair for the hair test. No dye.

https://hackstasis.com/threads/hs-approved-protocols.1327/

 

[Sam90]

Hi Sue, welcome to the forum. I'm a long-term sufferer from PSSD like yourself (started taking prozac aged 17 and came off when I was 22, I'm 28 now). I just saw that you are considering taking Welbutrin. I trailed this two years ago and it proved to be an absolute disaster. Much of my sexual function came back on the second day and then totally vanished and things just went from bad to worse. I ended up having to quit cold turkey and then went through a bad withdrawal that latest months and some symptoms persist today.

Many people have trailed it on the PSSD Forum and had some initial improvements which then quite quickly vanished. I haven't heard of anyone recovering and I wished I had researched it properly before I trialed it. So I just wanted to warn you. I have wondered if a low dose would have been different.

 

[joekool]

Dhea is an adrenal based hormone that companies use to create pro hormones but I’m not suggesting that at all. I wanted to start the conversation as to what have you tried and felt... maybe put together a list of what you’ve had experiences with.

 

[Helen]

Hi everyone,

I'm new here but unfortunately no stranger to PSSD.
Long story short, I'm completely med free since 2014 and I'm completely, and I mean COMPLETELY, asexual 4 and a half years later with no windows. I haven't been turned on since 2013 and I dont enjoy sex at all, ever. It's as if everything is turned off downstairs.

It's been so long since I was aroused that I cant even remember or imagine what arousal feels like. I'm in my 20s and had to fake it with every single guy until I just decided to be celibate altoghether, mostly because sex depresses me a lot as I get nothing out of it. As you can imagine, it's heartbreaking to say the least.

Does anyone know of any PSSD/PFS/PAS recovery stories in which the person had no windows/complete loss of sexuality for many years before improving?
Probably a shot in the dark but it's worth the shot at least. I feel so isolated in real life because of this condition, and I even feel isolated in the community because I seem to be the only one who doesn't see any windows, not even a little, not even a glimpse.

Anyway, thanks to whoever read my rant. I hope someone replies.

Thanks,

Sue

Follow @talkingant or @barbaar

those are PSSD guys.

I suggest you try what talkingant is doing along with vitamin k2

but it is best to do a hairtest

 

[Goose12]

Hi,

Thank you everyone for your input, much appreciated!

@Goose12 Would a hair test work on dyed hair, do you know? I have about 11 years of dye in my hair, haven't been my natural colour since 2009.
That gave me a lot of hope, thanks so much. Was your case severe too? And what did you try that worked? It's great to hear you've made such huge recoveries. At the moment I'm taking Bio-Kult good bacteria capsules for gut health, Vitamin D+K2 spray, and Choline and Inositol capsules. Thinking of starting Wellbutrin soon but I'm scared.

@joekool Thank you Joe, great to hear What is dhea?

@RebelWithACause Will do, thanks. The thing is that different things work for others and idek what to take. What is TEI?

The hair shouldn't be dyed and you one hair close to the scalp, about an inch long. They give you directions when you order the analysis.

I suffered from saw palmetto, its similar to fin. My worst symptoms were a constant racing mind (all day everyday), insomnia ( I averaged around an hour of sleep a night for 2 to 3 months, at my worst), no labido, balls ached all of the time, terrible digestion, constant pressure around liver, and moments of terrible liver/ gallbladder pain.

I have been pretty lucky. Most of the things I have tried have helped me somewhat or at least didn't set me back. I have tried cdnuts protocol, Ru 486, ellone, a simplified electrolytes protocol, and now tei. Tei has been by far the best thing I have tried.

Here is my log https://hackstasis.com/threads/goose-pfs-saw-palmetto-log-tei.90/

Read and take in as much as you can here. The search bar is your friend, if you have a question it's probably already been answered.

 

[sanka]

You rock my friend @Goose12