RANDOM QUESTIONS

wuf

Well-Known Member
Messages
880
What does it.mean to always have pain and feel heavy legs..??
I do always have this symptoms, pain all over my legs expecially in the calfs.
 

Shadow

Moderator
Messages
383
wuf post_id=3458 time=1509812742 user_id=65 said:
What does it.mean to always have pain and feel heavy legs..??
I do always have this symptoms, pain all over my legs expecially in the calfs.

this seems to be a commom symptom, not only among pfs sufferers but pssd too(including myself), besides pain do you have weird feelings too? like something in the nerves?
 

mattyb

Moderator
Messages
833
Shadow post_id=3459 time=1509812908 user_id=54 said:
this seems to be a commom symptom, not only among pfs sufferers but pssd too(including myself), besides pain do you have weird feelings too? like something in the nerves?

If Gbold is right and PFS/PSSD are states of alkalosis, this would cause tissue mineral retention and keep serum minerals low. This causes symptoms similar to dehydration (cramping, weakness, etc.). Dehydration itself can cause or aggravate alkalosis.

I am curious how people with PFS/PSSD would respond to consistent intake of oral rehydration salts.
 

mattyb

Moderator
Messages
833
vicecaz post_id=3437 time=1509749939 user_id=110 said:
Hello Matty, do you recommend a special brand for HCl ?
I'll try this method too

No specific brand no. You can get betaine HCl from most health food stores.
 

Shadow

Moderator
Messages
383
mattyb post_id=3462 time=1509814425 user_id=95 said:
Shadow post_id=3459 time=1509812908 user_id=54 said:
this seems to be a commom symptom, not only among pfs sufferers but pssd too(including myself), besides pain do you have weird feelings too? like something in the nerves?

If Gbold is right and PFS/PSSD are states of alkalosis, this would cause tissue mineral retention and keep serum minerals low. This causes symptoms similar to dehydration (cramping, weakness, etc.). Dehydration itself can cause or aggravate alkalosis.

I am curious how people with PFS/PSSD would respond to consistent intake of oral rehydration salts.

interesting, something that Ive noticed, I always had a some nerve disconfort in one of my legs, and after a root canal, I started to hear a very very mild tinnitus but only at night, at complete silence, after the crash, that leg nerve started to annoy me more, and the tinnitus is very loud now...

could an alkalosis state enhance nerve problems?
 

mattyb

Moderator
Messages
833
Shadow post_id=3465 time=1509814902 user_id=54 said:
could an alkalosis state enhance nerve problems?

Yes, alkalosis can severely interfere with nerve conduction.
 

shredder

Member
Messages
15
mattyb post_id=3285 time=1509635252 user_id=95 said:
If your digestion is shit, try supping HCl with meals or the combination of EVOO/ACV/Greens first thing in the morning (without eating again until lunch) for a few weeks.

The morning salad was the best thing I ever did for my digestion. Helped immensely. ACV provides hydrogen, while the greens provide chloride, and EVOO stimulates gallbladder secretion. Eventually this ups HCl and improves digesiton. I had major digestive issues for well over a year after taking a PPI and this was the main thing that restored my digestion. My stools were the same way - always loose. I was always bloated. Now I can eat whatever and I'm fine.
Could one obtain the chloride from juicing greens? I don’t do well with the fiber content of raw greens but I have a juicer so I’m thinking of making a tonic with green juice, evoo, and acv.
 

wuf

Well-Known Member
Messages
880
Shadow post_id=3459 time=1509812908 user_id=54 said:
wuf post_id=3458 time=1509812742 user_id=65 said:
What does it.mean to always have pain and feel heavy legs..??
I do always have this symptoms, pain all over my legs expecially in the calfs.

this seems to be a commom symptom, not only among pfs sufferers but pssd too(including myself), besides pain do you have weird feelings too? like something in the nerves?

Yes, I also have nerves pain all over my legs and even my arms...at times I can't even walk and the nerves become very warm and I can feel them burning even under my feet....
I have noticed it becomes worse depending on my digestion issue, during days I have digestion issue the nerves' pain become worse.
 

mattyb

Moderator
Messages
833
shredder post_id=3468 time=1509816184 user_id=98 said:
Could one obtain the chloride from juicing greens? I don’t do well with the fiber content of raw greens but I have a juicer so I’m thinking of making a tonic with green juice, evoo, and acv.

Probably. It's a worth a shot. If not, just try betaine HCl before meals.
 

Minime

Well-Known Member
Messages
232
Not sure where to post this question but since this is the random questions thread, here goes...
Regarding stress/anxiety: when I get into a stressful situation such as public speaking, an interview, or even a bluff at the poker table, my temperature PLUMMETS. I don’t mean my fingers and toes feel cold. I mean teeth chattering, body shivering, cold! What causes this? Does anyone have any recommendations on how to combat this? This has only begun in recent months as my PFS has worsened. Sorry if this is the wrong thread for this question...maybe [mention]TubZy[/mention] can move it if there is a more appropriate thread.
 

wuf

Well-Known Member
Messages
880
OK guys, here we go, I want to try Scene'so protocol.
- Aspirin (300mg) + copper (2.5mg) + magnesium (150mg) + potassium (99mg

Do you think I need a partinsular type of these minerals or not specific? (Example: chloride potassium or normal potassium)?

Plus, do you think I should use Pramipexole?
I wait your advises before to hurt myself.
Thanks
 

joekool

Moderator
Messages
551
@minime it’s def a stress response related to cortisol. Pfs isn’t helping that at all. I know tubzy fasted and it dramatically helped cortisol issues.

I would say, try to dress the part further based on this condition while you’re aware of it. Grab a pair of underarmour or hanes “2nd skin” like pants and top to wear first and then your regular clothes. It won’t add too much thickness and might help at least a little.

A suggestion that I don’t recommend but there are certainly more thermogenic fat burners that absolutely raise your temp but then you could risk other issues. Again, I’m only saying that so you know others might suggest it but I wouldn’t recommend it.
 

Minime

Well-Known Member
Messages
232
joekool post_id=4125 time=1510616607 user_id=75 said:
@minime it’s def a stress response related to cortisol. Pfs isn’t helping that at all. I know tubzy fasted and it dramatically helped cortisol issues.

I would say, try to dress the part further based on this condition while you’re aware of it. Grab a pair of underarmour or hanes “2nd skin” like pants and top to wear first and then your regular clothes. It won’t add too much thickness and might help at least a little.

A suggestion that I don’t recommend but there are certainly more thermogenic fat burners that absolutely raise your temp but then you could risk other issues. Again, I’m only saying that so you know others might suggest it but I wouldn’t recommend it.

Thanks @joekool for the suggestion. I have been wearing the 2nd skin for quite a while now but it doesn’t seem to be helping. I would love to try a fast, but my current job responsibilities simply wouldn’t allow me to do so.
 

Minime

Well-Known Member
Messages
232
wuf post_id=4124 time=1510615753 user_id=65 said:
OK guys, here we go, I want to try Scene'so protocol.
- Aspirin (300mg) + copper (2.5mg) + magnesium (150mg) + potassium (99mg

Do you think I need a partinsular type of these minerals or not specific? (Example: chloride potassium or normal potassium)?

Plus, do you think I should use Pramipexole?
I wait your advises before to hurt myself.
Thanks

[mention]wuf[/mention] I was wondering the same thing. I’m quite sure I easily get all the copper and magnesium nutrients simply from eating cashews and a bunch of greens and veggies every day. I’m not sure if I’m getting all the potassium you noted but not sure if the potassium is even necessary based on what gbolduev said. I have been eating this way for months and have not seen any improvement. So maybe it is the type of mineral that is not working for me. Or maybe my body is not absorbing minerals well. Anyway, let’s see what others say about the type of each mineral. Also, remind me...why aspirin?
 

wuf

Well-Known Member
Messages
880
Minime post_id=4127 time=1510621041 user_id=73 said:
wuf post_id=4124 time=1510615753 user_id=65 said:
OK guys, here we go, I want to try Scene'so protocol.
- Aspirin (300mg) + copper (2.5mg) + magnesium (150mg) + potassium (99mg

Do you think I need a partinsular type of these minerals or not specific? (Example: chloride potassium or normal potassium)?

Plus, do you think I should use Pramipexole?
I wait your advises before to hurt myself.
Thanks

@wuf I was wondering the same thing. I’m quite sure I easily get all the copper and magnesium nutrients simply from eating cashews and a bunch of greens and veggies every day. I’m not sure if I’m getting all the potassium you noted but not sure if the potassium is even necessary based on what gbolduev said. I have been eating this way for months and have not seen any improvement. So maybe it is the type of mineral that is not working for me. Or maybe my body is not absorbing minerals well. Anyway, let’s see what others say about the type of each mineral. Also, remind me...why aspirin?

""""I'm guessing because it stimulates respiratory centers, which causes minor hyperventilation and respiratory alkalosis, and the respiratory alkalosis will stimulate the body to lose bicarb to maintain acidity and induce a low-level metabolic acidosis (countering the persistent metabolic alkalosis of PFS). The increase in ventilation rate would also break down bicarb faster, since bicarb is broken down into CO2 + H20 at the lungs where the CO2 is released.

But I think it is a bit contradictory. Both ACE and aspirin cause metabolic acidosis but their mechanisms are very different. I think in the long run Aspirin poses more problems since it's primary mechanism still induces respiratory alkalosis and the metabolic acidosis comes secondary. ACE is different in that it's primary mechanism induces metabolic acidosis, the respiratory alkalosis that ensues is secondary. """""
 

MNK99

Well-Known Member
Messages
5,358
Did anyone get trapped into taking Finasteride bc of other medical issues causing hair loss
or other meds causing hair loss?

That's exactly what happened to me. ADHD meds -- one particular hurt hair a lot (used it 2 days).
Switched to a "hair-safer" and P.N.S. safer drug and used spiro cream. DID pretty well.

But then tried another psyche meds (I think 99% of them are straight poison for me and some others) - Lamictal.
AND then bc of major hair fall once again -- I tried something for hair -- FIn.

Anyone take TRT/ or have a thyroid issue or psyche, epilepsy, etc issue and their meds made them feel the need to take fin?
Just curious. Sorry to sound so negative. I'm actually getting more optimistic on fixing this whole thing.-
-Trying some protocol stuff now and will LOG l8r.

I had major adverse reactions on SNRI-Effexor and thought LIFE was over. AND somehow came out of that.
So this can't kill me either. We're all gonna make it bros/sis's.
 

Shadow

Moderator
Messages
383
MNK99 post_id=4210 time=1510690077 user_id=1389 said:
Did anyone get trapped into taking Finasteride bc of other medical issues causing hair loss
or other meds causing hair loss?

That's exactly what happened to me. ADHD meds -- one particular hurt hair a lot (used it 2 days).
Switched to a "hair-safer" and P.N.S. safer drug and used spiro cream. DID pretty well.

But then tried another psyche meds (I think 99% of them are straight poison for me and some others) - Lamictal.
AND then bc of major hair fall once again -- I tried something for hair -- FIn.

Anyone take TRT/ or have a thyroid issue or psyche, epilepsy, etc issue and their meds made them feel the need to take fin?
Just curious. Sorry to sound so negative. I'm actually getting more optimistic on fixing this whole thing.-
-Trying some protocol stuff now and will LOG l8r.

I had major adverse reactions on SNRI-Effexor and thought LIFE was over. AND somehow came out of that.
So this can't kill me either. We're all gonna make it bros/sis's.

This is a main problem, we took a drug which "solved" a issue and created another, then we took a drug to this new issue, and the loop goes on until something shitty like pfs happens.

Its ok to sound negative as long as you dont let it take control of yourself, Im saying this as someone who is suffering from terrible ssri discontinuation syndrome, the tinnitus is the worst and sometimes it make me think that the life is over, but then I realize that this kind of thinking just make things worse, and as you said, you kicked Effexor's fuckery in the ass, you can do the same with pfs too =)
 

MNK99

Well-Known Member
Messages
5,358
Thanks @[mention]Shadow[/mention]
It was crazy - Effexor made me a different person - an alcoholic from straight edge (up to teens at least).
And I had horrendous judgement. I am glad to treat ADHD when healthy but any other psychotropic is too harsh for me. The only real issues with Lamo were vision issues and hair loss. But I'd rather be a little crazy and erratic than medicate myself to death. I'll try to beat this fuckery too. Good luck on your battle!

I honestly suffered more on effx than off -- but I had shady mofos around me -- that plus mania/adhd, and substance abuse. I was lucky to survive all that. Which is why I really feel bad that I hurt myself again medically (fin).
 

bruschi11

Administrator
Staff member
Messages
2,705
MNK99 post_id=4210 time=1510690077 user_id=1389 said:
Did anyone get trapped into taking Finasteride bc of other medical issues causing hair loss
or other meds causing hair loss?

That's exactly what happened to me. ADHD meds -- one particular hurt hair a lot (used it 2 days).
Switched to a "hair-safer" and P.N.S. safer drug and used spiro cream. DID pretty well.

But then tried another psyche meds (I think 99% of them are straight poison for me and some others) - Lamictal.
AND then bc of major hair fall once again -- I tried something for hair -- FIn.

Anyone take TRT/ or have a thyroid issue or psyche, epilepsy, etc issue and their meds made them feel the need to take fin?
Just curious. Sorry to sound so negative. I'm actually getting more optimistic on fixing this whole thing.-
-Trying some protocol stuff now and will LOG l8r.

I had major adverse reactions on SNRI-Effexor and thought LIFE was over. AND somehow came out of that.
So this can't kill me either. We're all gonna make it bros/sis's.

I was a TRT guy smh. Basically on TRT due to misdiagnosed lyme/mycoplasma.